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ADDITIONAL RESOURCES & SUPPORT
For additional programs, resources, and support, please visit
the different CF nonprofit organizations below.
BreatheStrong CF advances the wellbeing of people with cystic fibrosis through education, direct support, and opportunities to thrive.
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Website: www.breathestrongcf.org
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Contact: Shawna Gray, shawna@breathestrongcf.org, 770-366-8714
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Programs: *UNITED STATES* - Exercise Grants (national), Critical Needs Assistance (GA only), BreatheStrong+ (national), Bold Enough to Ask, A BreatheStrong CF podcast discusses men's sexual and reproductive health amongst other adult relational topics
BreatheStrong CF advances the wellbeing of people with cystic fibrosis through education, direct support, and opportunities to thrive.
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Website: www.breathestrongcf.org
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Contact: Shawna Gray, shawna@breathestrongcf.org, 770-366-8714
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Programs: *UNITED STATES* - Exercise Grants (national), Critical Needs Assistance (GA only), BreatheStrong+ (national), Bold Enough to Ask, A BreatheStrong CF podcast discusses men's sexual and reproductive health amongst other adult relational topics
The Bonnell Foundation's mission is to give emotional and/or financial support to parents who have a loved one with cystic fibrosis. Educating the community about cystic fibrosis is a critical step in developing research (getting community support), advocacy and overall knowledge of issues that face the CF population. The hope is one day no CF parent will experience the pain of losing a child to this disease.
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Website: https://thebonnellfoundation.org
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Contact: Laura Bonnell, thebonnellfoundation@gmail.com, 248-520-2329
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Programs: *UNITED STATES* - financial assistance (medical and durable goods), organ transplant funds and education scholarships (university, trade school and community college). CF Familia and Arabic page, Hand in Hand mentoring program for caregivers and soon for college students, CF Master Class and Global Master Class, Living with cystic fibrosis podcast and Hospital Bag program (social workers order the bags and give them to parents of pediatric CF patients and adults hospitalized also get a bag full of phone chargers, gift cards and many more comfort items).
The Boomer Esiason Foundation is a dynamic partnership of leaders in the medical and business communities joining with a committed core of volunteers to heighten awareness, education and quality of life for those affected by cystic fibrosis, while providing financial support to research aimed at finding a cure.
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Website: https://www.esiason.org/
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Contact: info@esiason.org 646.292.7930
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Programs: *United States* Scholarships, IVF Grant, Financial Hardship Assistance, Research Grants, Education Programs, BEF Athletes and Ambassadors, Team Boomer, Patient Advocacy
CF Bridge of Hope provides CF care available to US patients to patients in underserved countries around the world.
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Website: https://www.cfbridgeofhope.org/
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Contact: Bean Corcoran, cfbridgeofhope@gmail.com, 203-858-2149
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Programs: *WORLDWIDE* Visa application assistance, airfare to the US, free CF clinic appointments, all food, housing & travel within the US. medications
CFPhysio's mission is to develop and deliver physiotherapy-focused resources and programs that are sustainable, accessible, and responsive to the needs of the CF community (individuals with CF, caregivers and clinicians). To collaborate, connect and create a community that supports knowledge, wellness, and empowerment in the physiotherapy aspects of cystic fibrosis care.
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Website: https://cfphysio.com/
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Contact: Jen Hauser (President/Founder), info@cfphysio.com
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Programs: (Online) Learning Management System (LMS) for healthcare professionals, community website, education series (online virtual live education sessions), podcast library (Podcast – CF Physio)
Current Projects: REACH for CF - Research, Education and Collaboration Hub for CF - a space for CF clinicians to share evidence based education, research initiatives and shared clinical experiences. To register membership email info@cfphysio.com
CFPhysio Across Oceans - development of resources to support CF clinics across the globe with limited access to professional development, and clinical expertise in physiotherapy management.
CF Vests World Wide's mission is to provide life-saving cystic fibrosis therapy vests to underserved patients around the world, ensuring that no one is denied essential care because of financial or geographic barriers.
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Website: https://www.cfvww.org/
Contact: Rod Spadinger, rod@cfvww.org, 808-292-9877
Programs: *WORLDWIDE* CF Vests Worldwide donates therapy vests; Creon, Zenpep, Pertzye enzymes; and CFTR Modulator Therapies (Trikafta) to global CF communities
To mission for CFRI is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support.
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Website: https://www.cfri.org/
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Contact: cfri@cfri.org, 650-665-7576
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Programs: *WORLDWIDE* CFRI’s research programs include funding opportunities to support original CF research projects. Education and support offerings include psychosocial support programs such as counseling assistance and monthly support groups, wellness classes, a national CF conference, community retreats, newsletters, and the CF Community Voices podcast series. CFRI also connects the CF community with patient assistance resources that can help with financial, medical, and legal support needs. In addition, CFRI engages in advocacy and awareness initiatives to support access to care and improve quality of life for those affected by CF.
Claire’s Place Foundation provides heart-felt assistance to the families of children and to individuals diagnosed with cystic fibrosis. We work to heighten awareness and we provide education, skills, financial and emotional support.
Website: https://clairesplacefoundation.org/
Contact: Melissa Yeager, melissa@clairesplacefoundation.org, 1 855-LOVE CPF (855-568-3273)
Programs: *United States* Claire’s Place Foundation provides direct financial assistance through its Extended Hospital Stay Grant Program to families and adults with cystic fibrosis facing prolonged hospitalizations, helping cover essential living expenses during medical crises. Through Work Proudly, its remote career support program, the foundation offers individualized coaching to adults with CF seeking flexible, sustainable employment that supports their health. The Support Families Network connects families to emotional support, trusted resources, and a compassionate community. In times of widespread crisis affecting the CF community, including COVID and the recent LA wildfires, Claire’s Place steps up with rapid-response support to ensure families receive help when it is needed most.
The Cody Dieruf Foundation for Cystic Fibrosis is uniting communities and families living with cystic fibrosis by raising awareness, providing emotional and financial assistance, encouraging health management, and inspiring life experiences.
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Website: www.breathinisbelievin.org
Contact: Pam Western, Pam@breathinisbelievin.org, 406-539-7612
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Programs: *Montana, North Dakota, South Dakota, Wyoming*
REC & FIT scholarships, Extenuating Circumstances for emergency needs, Medical/Travel assistance, Annual Mothers Retreat for moms of children and adults living with CF *United States*
Emily’s Entourage accelerates research and drug development for the final 10% of people with cystic fibrosis (CF) that do not benefit from existing CFTR modulator therapies. By providing critical leadership and coordination, Emily’s Entourage drives high-impact research, cultivates multi-stakeholder collaboration, and facilitates information exchange to speed breakthroughs. Our goal is singular: to expedite lifesaving treatments and a cure for the final 10% who are waiting with bated and fading breath.
Website: www.emilysentourage.org
Contact: Emily, admin@emilysentourage.org, 484-572-3374
Programs: *WORLDWIDE* Research grant funding, Strategic investments via venture philanthropy, Clinical trial recruitment support via our global Clinical Trial Connect (CTC) patient database
The Filitimo Foundation provides adults with cystic fibrosis (CF) the resources and support they need to thrive.
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Website: https://filotimofoundation.org/
Contact: Pete Proimos, info@filotimofoundation.org
Programs: *UNITED STATES* - Financial hardship assistance, lodging or travel assistance for medical treatment and clinic visits, fertility and family building support including adoption assistance, and gas and transportation support
Halite Solutions Group (HSG) is a nonprofit advancing collaboration, education, and advocacy for people with cystic fibrosis, strengthening well-being through connection, shared purpose, and community-centered care pathways.
Website: https://www.halitesolutionsgroup.org
Contact: Kristina Robinson, kristina@halitesolutionsgroup.org, 480-629-4457
Programs: *Worldwide*
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CF Senior Saturdays (CFSS) – A virtual monthly gathering focused on the unique needs of older adults (40+) with CF.
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Aging with CF Special Interest Group – Advisors supporting CFSS, raising awareness of issues facing older adults with CF, promoting disease education & research, and contributing to awareness & advocacy projects.
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CF Project Groups – Collaborative teams developing free resources and advocacy papers, including:
Jillian's Jay Walkers mission is to empower individuals with cystic fibrosis by providing resources, support, and community connection that inspire hope to live a fulfilling life.
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Website: https://www.jilliansjaywalkers.org/
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Contact: Jillian, Jill@jilliansjaywalkers.org, 586-741-3030
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Programs: *UNITED STATES* - Air Filter Unit Device Grant, Supplemental Grocery Assistance Grant & Nutritional Program
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Live Fearlessly Foundation's mission is to get others with CF active and pursuing their passions. Live Fearlessly also helps people with CF who are on the lung transplant journey.
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Website: Livefearlesslyfoundation.com
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Contact: Alexis Smith, alexis@livefearlesslyfoundation.org, 910-599-7528
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Programs: *UNITED STATES* - Grants for activities that help with overall health. Monetary grants for basic needs while on the lung transplant journey.
The mission of Piper's Angels Foundation is to support and improve the lives of families in the cystic fibrosis community through advocacy, innovative programs, awareness, education, life expanding activities, urgent financial support, and funding critical developments.
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Website: https://www.pipersangels.org/
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Contact: Casey McCullough, info@pipersangels.org, 833-723-9423
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Programs: *WORLDWIDE* - Urgent Financial Assistance, Meditation & Mindfulness, Breathwork, Care Packages, Mentorship, Virtual Support Sessions, Ocean Activity Scholarships, International Aid
The Rock CF Foundation empowers people with cystic fibrosis through programs, events, and advocacy that enhance their quality of life, and raise public awareness about CF.
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Website: https://www.letsrockcf.org/
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Contact: emily@letsrockcf.org, 734-341-5867
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Programs: *UNITED STATES* - Kicks Back program, Bowman Brothers Trade School Scholarship, Boltcast podcast, Free entries to participate in all Rock CF running, cycling and hike events.
Vivian Lee Foundation's mission is to support children and adults living with cystic fibrosis in the daily struggles and challenges.
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Website: vivianleefoundation.org
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Contact: Christy Rimrodt, christy@vivianleefoundation.org, 503-407-4836
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Programs: *UNITED STATES* - Support groups, caregiver retreat, financial assistance, activity grants, and a scholarship program.